What happens when a child grows into middle adulthood unaware that she is abnormal? Here the author chronicles the first half of her life, lived under false assumptions. A medical mystery, "compelling and well written" according to K.D. Robins.

Dominoes: A Memoir

Health, Fitness & Dieting

Kerry, Kathleen

Diseases & Physical Ailments

Lemonade Press

Pssst.... this is from one Dad to another. If you're past your 20s (and 30s), and you just found out that your wife is pregnant, you are probably full of questions (and fears?) that few people can answer. Some of your friends have kids who are already grown up, and the rest of your friends probably don't want them. If your parents are still around, they might barely even remember the issues you're about to face. What does it mean to start the journey of fatherhood a bit later in life?I was in my 40s, and terrified, even though I always knew I wanted to be a Dad someday. (Just not THIS day!) When you find out that Baby is coming, it's both wonderful and frightening. What should you expect? So right now you're probably a bit freaked out, hopefully you're also happy, but above all you're BUSY! This book is mercifully short, direct, and to-the-point. I anticipated your questions about what you should (and shouldn't) be afraid of, what your shopping list should look like, and a healthy dose of encouragement. Don't worry... you've got this under control.

New Dad at 40: A very short book of essentials to get you through pregnancy and the first year

Sylvan, Aaron Charles

Women's Health

If you read it, you will never forget it.Wayne Johnston, author of The Mystery of Right and Wrong and The Colony of Unrequited DreamsHave you read Erin Paterson’s memoir All Good Things yet?” It’s her gift to the Huntington's disease community and others far beyond.Jimmy Pollard, activist and bestselling author of Hurry Up & Wait!A raw and honest account of Erin’s journey with testing for the genetic condition Huntington’s disease and wanting to have children.Huntington’s Disease Youth Organization (HDYO)I highly recommend this book. It will remind you that you are not alone.Seth Rotberg, patient advocate and TEDx speakerErin Paterson always expected she’d get married and have kids. But when Erin was diagnosed with a rare genetic disease, she and her husband were faced with a difficult decision: Should they continue trying to get pregnant, knowing their child could inherit the same debilitating condition? Were their dreams of having a family over just as they’d begun?In this intimate account of secrecy, sorrow, and finally hope, Erin shares her journey along the path to motherhood. All Good Things: A Memoir is an inspirational narrative about overcoming unexpected life challenges and learning to find happiness.

All Good Things: A Memoir About Genetic Testing, Infertility and One Woman's Relentless Search for Happiness

Parenting & Relationships

Paterson, Erin

Fertility

These moving stories of real people affected by Huntington’s give a human face and voice to this dreadful illness, making the unimaginable imaginable and felt by the heart. 
Lisa Genova, New York Times bestselling author of Inside the O’Briens\nWe often remark in life that “nobody knows what goes on behind closed doors,” but without first-hand stories like these, I don’t think we really understand the extent of that sentiment. I implore anyone to read HD Heroes. 
George Rainsford, actor and patron for the Huntington’s Disease Association\nEssential reading for anyone affected by Huntington’s, whether carrier, caregiver, partner, or friend. Profoundly moving accounts by those with or at risk of inheriting this cruel disease. 
HelenPidd, author and North of England editor at the Guardian.\nI was truly brought to tears by the authors’ courage and fortitude in finding ways to deal with the hardships and create empowerment from the difficult road HD represents—it is motivational and inspirational for all of us to read. 
Leslie M. Thompson, HD researcher\nHD Heroes invites the reader to become part of the HD team by having a better understanding of the impact of the disease on the real lives of those living it. The contributors here have shared their lives in a brave and open manner. 
Mark Guttman MD, FRCPC neurologist and clinical researcher in HD\nHD Heroes is a moving, powerful, and remarkable collection of personal stories from people affected by HD in some way. Their stories must be read by anyone interested in learning more about what makes our HD family community so amazing. 
Professor Sarah Tabrizi, HD doctor and scientist\nHuntington’s disease has been steeped in secrecy and fear for generations, leaving people in the community without a voice. This book changes that. Twenty-six people from nine countries bravely share their personal stories about living in the shadows of this disease. By doing so they are saying: Here I am. I will not be kept silent.\nFrom a scientist who switched from cancer research to studying Huntington’s after finding out her mother had tested positive for the disease, to a young man whose biggest fear was testing gene negative and not inheriting the disease, to a woman who grew up in survival mode, unable to express her grief. We learn about the ways their lives are better off because of the hardships they have faced. By sharing these intimate parts of their lives, they are taking away the fear and stigma of living with HD in their families, and for that reason alone they are truly all HD heroes.\nAnd when you read these stories, you will see that YOU are an HD hero too.\nThis book shares first-person stories from people who have tested gene positive, who have tested gene negative, or who have decided not to test, as well as stories from young carers, families living with juvenile HD, scientists, HD advocates, and more.\n50% of the profits from the sale of this book will be donated to HDYO (Huntington’s Disease Youth Organization).\nWith stories from Charlie Burke, Emma Burnip, Ashley Clarke, Andrea Florian, Scarlett J. Florence, Lindsay Groot, Josh Halliday, Emma Harris, Rob Haselberg, Jenny Louise Johnson, Brandon Khoury, Sarah Khoury, Shelby Lentz, Domonique Claire Link, Dr. Tamara Maiuri, Joshua Marshall, Judy Melville, Paramjit Oberoi, Erin Paterson, Erin Pryce, Archana Ravada, Mackenzie Remillard, Gabrielle Russo, Joanne Somerville, Mandy Urbach, and Emma Wajswasser\nSpecial contributions from Erika Boulavsky, Jenna Heilman (HDYO), Charles Sabine, and Dr. Malvindar Singh-Bains

Huntington's Disease Heroes: Inspiring Stories of Resilience from the HD Community (Lemonade Life Series)

Haselberg, Rob

Maiuri, Dr. Tamara

Halliday, Josh

Lentz, Shelby

Florian, Andrea

Remillard, Mackenzie

Pryce, Erin

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