My Parent Has a Brain Injury

Jo Johnson

Health, Fitness & Dieting

Lash and Associates Publishing/Training, Inc.

This book is about change and about how to make things better by fostering community inclusion for persons with disabilities. Building on the simple concept of community, it explores the complexities, challenges and rewards of working to develop a community where each person belongs young and old, children and adults, with and without disabilities. Condeluci shows how to build tolerance of differences within a community. Topics include understanding the concepts of community and social capital; looking at what we all have in common; finding a community and understanding how it operates; and working with the gatekeeper. As an interactive manual, it guides the reader through exercises with narratives that teach about communities and demonstrates methods for becoming a valued member. Written for persons of all abilities and ages, it can be used by parents of children with special needs, by professionals to assist participants, people with disabilities or consumers, and by individuals for personal growth.

Together is Better: Creating a community where each belongs

Al Condeluci

PH.D.

Diseases & Physical Ailments

This workbook is designed as both a reference for in-depth clinical information as well as a hands-on tool for addressing the many challenges of living with a brain injury. As survivors, families and caregivers achieve new goals, encounter setbacks, and meet new challenges, this workbook provides information, strategies, tools, and checklists that will guide the reader through the next phase of recovery. Twelve chapters discuss critical issues that most survivors, families and caregivers deal with at some stage in recovery after a brain injury. The workbook starts with helping readers understand what happens when the brain is injured and describes the complex medical issues involved for survival. As all families know, medical treatment comes at a cost, and there are many more hidden costs for families. A chapter on financial and health care concerns tackles the often confusing array of disability benefits, financial support, and health insurance. As survivors leave the hospital or rehabilitation setting, the chapter on neuropsychological assessment helps prepare them for returning home and reentering their community. Next is a chapter on the use of medications for the behavioral and emotional changes that often accompany a brain injury, with worksheets to help manage medications and to discuss treatment with your physician. The next chapters address the changes in behaviors that are so often stressful, confusing and difficult to manage at home. Closely linked to this topic is a chapter on the emotional challenges, including depression and anxiety, that can affect both survivors and caregivers. Next is a chapter on employment strategies and resources for survivors who are seeking a first time job or are considering returning to work. Closely linked to this is the next chapter on managing cognitive changes and fatigue in order to lead a more productive and fulfilling life. For those readers with a child who has been injured, there is a special chapter on returning to school after brain injury that focuses on the critical transition to adult life. The risks of alcohol and other drug use after brain injury are frankly discussed, as substances are too often used in attempts to fight depression, isolation, and other losses. The chapter on veterans discusses not only the consequences of blast injuries and brain trauma but also post traumatic stress disorders (PTSD) as service members return home. Because so many survivors have found themselves socially isolated as time passes since their injury, the final chapter focuses on re-connecting with relationships and community activities. As you can see from this list, the authors have addressed a wide range of topics and issues that survivors, families and caregivers have said are critical for their recovery.

Living Life Fully after Brain Injury: A workbook for survivors, families and caregivers

M.D.

CRC)

Robert T. Fraser

Kurt L. Johnson

Kathleen R. Bell

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