Intimate Grief: My Struggle With Ald

This is the first time a story of Adrenoleukodystrophy is told based on real life events through the eyes of John. The eyes of a determined individual that, despite the different obstacles he faces daily, has found the strength and courage to defy the odds. At first his illness was an enigma to doctors, but a horrible accident changed that. The accident not only altered John's life, but also John's younger brother, Carlos. Carlos started doing inexplicable things after the accident. John was unhealthy and so was Carlos therefore the doctors concluded that it must be genetic. It was hard enough to have one family member living with a rare disease now another brother has to suffer from it, the luck on this family! The news made a big impact in John's life, and what made matters worse was that Carlos's health was deteriorating at a fast rate. Adrenoleukodystrophy made John a stronger person that needed to prove himself and to others that this illness was not going to get the best of him. The struggle continues...