Genetics and Genetic Services: A Child Welfare Worker's Guide

Because of medical advances, more infants, children, and adolescents with genetic disorders are surviving longer. These children are, unfortunately, more likely than other children to enter the child welfare system. This book was developed for professionals who are involved with families affected by genetic disorders. Part I provides information about genetics and discusses the current genetic services, conducting a genetic family history-taking interview, and recording and transmitting information. Part II focuses on psychosocial intervention with children and families affected with genetic disorders. Chapter topics include workers' self-awareness about differentness and demands on caregivers. The final chapter reviews cultural diversity issues related to genetics and birth defects. The Guide begins with quick references for hand, practical information about obtaining genetic services for clients. This useful book also has several exercises on the complex and difficult social and ethical issues associated with genetic information for readers to complete and discuss.