Antiphospholipid Syndrome (or Hughes Syndrome as it is also known) is an illness that it is not well understood by doctors, let alone patients as yet. Kay Thackray's first book: 'Sticky Blood Explained' attempted to demystify the illness, as few existing books were aimed at the ordinary person with antiphospholipid syndrome. Many common symptoms were not discussed in print elsewhere and many people bought extra copies of the book for their doctor or family to increase their understanding. In this second book the author has tried to continue to explain all that she knows and understands about this disorder in a friendly and accessible way. So much changes so quickly with an illness that is only 20 years old and new discoveries are made and need to be passed on to those who live with Hughes Syndrome. It is a continual process learning about this illness, and Kay speaks to many people including Dr Graham Hughes, the man who Hughes Syndrome is named after, and fellow patients. It is all too easy to use technical terms and sound super-intelligent, the problem is that only a select few will understand! The author has found that writing in the same way that she talks to people gets the message across and simplifying facts that are hidden in complicated medical reports is appreciated by many! The book also covers the author's own life and challenges which allow her to understand and empathise with the reader, because she has been there. "I know my writing helps many to cope with this terrible illness because they tell me so and that gives me more pleasure than I can tell." Kay Thackray

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Thackray, Kay

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Arima Publishing

Hughes Syndrome is now recognised as a major 'new' disease. It has been described by colleague Dr Josep Font of Barcelona, as, "one of the two new diseases (with AIDS) of the 20th century".
The messages are simple. Blood clots can cause untold damage. The tendency to 'sticky blood' found in Hughes Syndrome can be diagnosed by simple blood tests. The use of medicines, some as simple as aspirin, can protect against the clotting tendency. Kay Thackray here provides just the sort of clear guidance patients with Hughes Syndrome need. Coming from a patient, and coming straight from the heart, I believe that the lessons provided by this book are beyond value. - Munther A Khamashta MD FRCP Consultant Physician, Lupus Unit ST THOMAS’ HOSPITAL, LONDON

Sticky Blood Explained: Hughes Syndrome

The description by Graham Hughes of the "antiphospholipid syndrome" or Hughes Syndrome is one of the medical landmarks of the 20th century. Here is a disease, a medical discovery, which should turn such fashions around. In a series of brilliant clinical observations, Dr Hughes, not only pieced together what is now clearly a common and important disease, but also, with his team, set up the blood tests and treatment guidelines, which are used world-wide. In a series of clinical articles in the early 1980s, Dr Hughes and his team described the headaches, the miscarriages, the clotting tendency, the effect on platelets, the strokes, the memory loss.. and almost all of the clinical picture now recognised as a distinct syndrome. This was not an anecdotal observation. It was a prime example of meticulous clinical observation and dogged determination. Hughes Syndrome is now recognised as a major new disease. It has been described, by Dr Josep Font of Barcelona as, "one of the 2 new diseases (with AIDS) of the 20th century". Despite being 20 years old, and being of major importance in the diagnosis of strokes, migraine, multiple sclerosis, and miscarriage, the syndrome is still under diagnosed by doctors. This book by Kay Thackray is an important contribution to the understanding of the syndrome.

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