<p>critically ill and unlikely to survive. A recent Harvard University study on pediatric end-of-life care has shown that the medical community is failing such children and their families. Indeed, in their effort to be ever-hopeful and cure-oriented in the face of a child's terminal illness, they neglect to advise parents on the basics of emotional support for all family members, pediatric pain medication, and the need for making plans and worst-case preparations.Based on the National Advanced Illness Coordinated Care program and the stories and advice gleaned from co-author Joanne Hilden's years of work as a pediatric oncologist, Shelter from the Storm fills this advice-and-caregiving void. A compassionate road map to what the family may have to face, what they may be asked to decide, and how they might want to involve their child in the decision-making, Shelter from the Storm will help parents and caregivers make informed, loving, and protective choices on behalf of their children in the most trying of times.</p>

Shelter From The Storm: Caring For A Child With A Life-threatening Condition

Self-Help

Joanne Hilden

Karen Lindsey

Daniel R. Tobin

Death & Grief

Perseus Publishing

See the best price to sell, buy, or rent books by Joanne Hilden. BookScouter helps to compare book prices from 25+ online bookstores and 30+ buyback vendors with a single search.

Books by Joanne Hilden

See the best price to sell, buy, or rent books by Joanne Hilden. BookScouter helps to compare book prices from 25+ online bookstores and 30+ buyback vendors with a single search.

Shelter From The Storm: Caring For A Child With A Life-threatening Condition