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Insatiable: A Prader-Willi Story (The ORP Library)

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Insatiable: A Prader-Willi Story (The ORP Library) image
ISBN-10:

1939418674

ISBN-13:

9781939418678

Author(s): Frisk, Debbie; McCutchin, Chelsea
Released: Sep 16, 2014
Publisher: RTC Publishing
Format: Paperback, 304 pages
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Description:

Estimated to occur once in every 15,000 births, Prader-Willi Syndrome is a rare genetic disorder that includes features of cognitive disabilities, problem behaviors, and, most pervasively, chronic hunger that leads to dangerous overeating and its life-threatening consequences. Insatiable: A Prader-Willi Story draws on dozens of intensive interviews to offer insight into the world of Violet, a young girl with Prader-Willi Syndrome. For Violet, Prader-Willi Syndrome impacts everything from family and social relationships to education to her own self-image. But with the persistence of her parents and the help of experts, she will eventually discover not just how to live with Prader-Willi Syndrome—but how to live as Violet.

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